We’ve been getting a lot of questions about whether or not Keith is on the kidney transplant list. The short answer? No. The long answer is a little more complicated.
One of the reasons that Keith’s doctor wanted to do Peritoneal Dialysis (PD) rather than any of the other kinds (hemodialysis for example) is because it’s a little easier to live with. Keith is in his 50’s and was employed full-time before he went into the hospital in May. PD patients are usually in a little better health before they start dialysis. And, since PD can be done just about anywhere, patients can keep working, going to school and living their lives until they’re ready and able to get a transplant. In an upcoming post I’ll explain what happened after Keith started dialysis, but for let’s just say he had a really rough start.
The long-term plan is still for Keth to get on the transplant list. But, there are a lot of things that need to happen first. It’s only in the last couple of months that Keith’s started to stabilize with his numbers across the board getting to where they need to be. He has to be stable for a while before they can consider putting him on the list. At this point, because of the problems we’ve had getting him stabilized, he’s lost a lot of muscle tone and is generally weak. He’s going to need time to get his strength back and to get to the point where things like his memory and other things are back to where they need to be.
And that’s ok. I would love to say that we’re waiting for the call. It would be great to say that after the transplant our lives would go back to “normal” (some would correctly argue our lives haven’t really ever been normal). But that’s not where we are. Transplant is still a milestone, but there are a lot more milestones we need to hit first. Things like being able to go out one day and not sleep the whole next day. Things like being more aware. Things like being able to walk around without a cane to help him keep his balance.
Our next milestone is this week’s appointment with Keith’s team at the dialysis clinic. We’re hoping to have good numbers three months in a row. One step at a time and one step closer to the transplant list.